Having our omic cake and eating it too: Evaluating User Response to
using Blockchain Technology for Private & Secure Health Data Management and
Sharing
- URL: http://arxiv.org/abs/2004.11502v1
- Date: Fri, 24 Apr 2020 01:11:40 GMT
- Title: Having our omic cake and eating it too: Evaluating User Response to
using Blockchain Technology for Private & Secure Health Data Management and
Sharing
- Authors: Victoria L. Lemieux, Darra Hofman, Hoda Hamouda, Danielle Batista,
Ravneet Kaur, Wen Pan, Ian Costanzo, Dean Regier, Samantha Pollard, Deirdre
Weymann, Rob Fraser
- Abstract summary: This paper reports on the development and evaluation of a prototype blockchain solution for private and secure individual omics health data management and sharing.
The project studies potential ethical, legal, social and cognitive constraints of self-sovereign healthcare data management and sharing.
- Score: 0.7864601533868449
- License: http://creativecommons.org/licenses/by/4.0/
- Abstract: This paper reports on the development and evaluation of a prototype
blockchain solution for private and secure individual omics health data
management and sharing. This solution is one output of a multidisciplinary
project investigating the social, data and technical issues surrounding
application of blockchain technology in the context of personalized healthcare
research. The project studies potential ethical, legal, social and cognitive
constraints of self-sovereign healthcare data management and sharing, and
whether such constraints can be addressed through careful user interface design
of a blockchain solution.
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