Having our omic cake and eating it too: Evaluating User Response to using Blockchain Technology for Private & Secure Health Data Management and Sharing

• URL: http://arxiv.org/abs/2004.11502v1
• Date: Fri, 24 Apr 2020 01:11:40 GMT
• Title: Having our omic cake and eating it too: Evaluating User Response to using Blockchain Technology for Private & Secure Health Data Management and Sharing
• Authors: Victoria L. Lemieux, Darra Hofman, Hoda Hamouda, Danielle Batista, Ravneet Kaur, Wen Pan, Ian Costanzo, Dean Regier, Samantha Pollard, Deirdre Weymann, Rob Fraser
• Abstract summary: This paper reports on the development and evaluation of a prototype blockchain solution for private and secure individual omics health data management and sharing. The project studies potential ethical, legal, social and cognitive constraints of self-sovereign healthcare data management and sharing.
• Score: 0.7864601533868449
• License: http://creativecommons.org/licenses/by/4.0/
• Abstract: This paper reports on the development and evaluation of a prototype blockchain solution for private and secure individual omics health data management and sharing. This solution is one output of a multidisciplinary project investigating the social, data and technical issues surrounding application of blockchain technology in the context of personalized healthcare research. The project studies potential ethical, legal, social and cognitive constraints of self-sovereign healthcare data management and sharing, and whether such constraints can be addressed through careful user interface design of a blockchain solution.

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